I thought this worth sharing for anyone struggling with neuropathy. Pay close attention to the dosing process employed here, starting with 30 seconds of treatment once a day. This is why it is strongly recommended that you use these devices under clinical supervision and not rely on manufacturers instructions for guidanc on best use of photobiomodulation devices.
I started using the Vielight Neuro Gamma PBM helmet on 4/16/2021. At that time, I was experiencing severe pain and leg weakness from an auto-immune neurological disorder, significant irritable bowel syndrome manifested by chronic constipation (IBS-C), recurrent chest pain due to a lung infection, excessive fatigue and depression. My auto-immune disorder and related medical issues problems had been steadily worsening since May 2019. By April 2021 I had trouble climbing more than three steps, walking more than a city block, carrying out simple house work or grocery shopping and chronic pain that averaged 5-8 daily (on a scale of 1 – 10).
My symptoms also interfered with memory and concentration.
I initially started using the Vielight as an alternative to increasingly powerful opioid pain killers. I tried the gamma stimulation for a 30 second interval once a day. I found the stimulation disruptive (it increased my irritability and depressed my mood). I then tried the alpha stimulation for 30 seconds, and slowly increased by 30 seconds to 5 minutes once a day. In June, after 2 months, I went to twice a day (morning and early evening) alpha stimulation with 5 minute durations.
I noticed that the severe neuropathic pain (burning, tingling in my legs and arms) as well as the severe joint pain in my knees, hands, wrists, and hips slowly decreased after about a month of daily use. I also noticed that my pain level would shoot back up if I skipped a day, and was excruciating if I skipped two days. I have discontinued strong pain killers and now only need an occasional Tylenol. In addition, my mood stabilized and markedly improved after 3 months of twice daily use. I use the Vielight while watching TV or reading the paper.
Prior to using the Vielight, I reached a point where I could not stand for more than 15 minutes or carry groceries over 5 pounds. I had to take stimulant medication in order to get out of bed. If I didn't take the medication, I needed daily hour-long naps in the mid-afternoon and didn’t have the energy to do anything. At times over the past two years, I have needed to use a cane or walker to be able to get around in my own home and couldn't walk more than 1/2 city block. Now, I can stand for several hours, easily ascend and descend two flights of stairs, and recently walked over 3,000 steps.
I had two episodes of severe colitis over the past year (one requiring hospitalization) and was taking prescription strength medication to address chronic constipation. In mid-September I started to taper the medication and as of October, no longer have a problem with constipation and have discontinued this medication. My strength has improved to a point that in early September I was able to resume food shopping, cooking, and light housework.
In early October 2021, (after 6 months of use) I started added 2 minutes of gamma stimulation followed by 5 minutes of alpha once a day in the morning, and a separate 5 minute session of alpha stim. in the afternoon. I will slowly increase the length of gamma stimulation. I immediately notice improved mental clarity. (For example, on 10/5 I suggested to my daughter’s NP that they check my daughter’s hormone blood levels and consider using Botox injections for pelvic pain).
Lastly, no more suicidal ideation.
Call 267-481-3987 for more information or write MarvinBerman@quietmindfdn.org
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